Friday, December 30, 2011

Friday, December 30

Terry arrived today and will be the new contact for Margaret's friends.  My phone number is 763-432-9090.
Margaret was happy to visit with Jeremy and Amelia and their friends and watched a movie with them while snuggling with her daughter in bed.  Friends came a bit later in the day bearing gifts of strawberries and cream and chocolates.  First day of real food that didn't look like baby food - lasagna for dinner!  Since Barb was the food police I now need to take that role and make sure she eats carefully and eats well with good veggie and fruit drinks.  One of her favorites today was blueberry kefir.
 It is again a holiday weekend at the rehab center so there won't be as much therapy.  It will rev back up on Tuesday with a full day's schedule.

Happy New Year from Margaret and her family!

Thursday, December 29, 2011

Thursday, December 29

We are settling into rehab life. Margaret's schedule has been shuffled around a bit to allow her naps in between therapy sessions, but already in 1 day I have seen her stamina increase.  I guess what I am learning is that every day can be very different from the last.  Margaret's head and eye movement to the left is increasing and she gains a bit more independence with each day as she learns to balance and control her body.  She received a pleasant manicure and pedicure from 4 wonderful friends last night and there was quite a bit of giggling and laughter going on as I kept furtive watch for any staff in uniform who might take an inkling to stop such women fun!  Actually the staff is great, very respectful and caring.  The women closed the evening with the rosary and prayers for Margaret and her recovery.  Thank you for such an uplifting gift you gave both of us.
  Terry, Margaret's brother will be arriving in Atlanta Friday as he takes over from Barb. I am sure he will give you his contact information so you can keep in touch.
 

Tuesday, December 27, 2011

Tuesday, December 27

"Amazing Grace" resounded through the family room as Margaret played the piano today.  Half asleep, since Recreational therapy came right on the heels of OT and PT and ADL (adult daily living) therapy, she could still play perfectly with her right hand.  We were on next to play poker, but one can't do that in your sleep! (Darn, I was ready to bet her on that beautiful shawl she received).  After a nap, lunch arrived and in the afternoon more PT and speech therapy.
  The flowers, balloon, Santa toy and cards are all used by the therapists to turn that head to the left, so thank  you again for making the room so bright and cheerful!
  We have a few needs if anyone cares to bring something.  Shoelaces that are elastic - the curly kind - would be appreciated.  A pedicure and manicure would be a welcome gift at this time if the curist (new word) would be able to come to the rehab center.  My phone number is 952-356-2841 (Barb - Margaret's sister).  Just a note after seeing how today went:  I'm guessing a visit late afternnoon or evening will be better than earlier as Margaret needs the naps after therapy right now.  
 

Monday, December 26, 2011

Monday, December 26

 Margaret spent Christmas with her children, sister and friends.  Although it was a holiday she still had OT and PT therapy.  There was a Christmas service which she attended and a special brownie treat whipped up into puree.  We are told that tomorrow, once the holidays are now past and regular staff is on hand, the program gets stepped up quite a bit. So, I am letting her take a little doze this morning after OT, but we will attack bedside exercises at intervals throughout the day.
  If you come to visit, ask the woman who is in her room if that is her mother.  It will bring a really big grin to Margaret's face!  Although I'm only 4 years older, 2 nurses have asked that question already!  OK, Margaret does look quite young in her boyishly cute crew cut and I do have grey hair; maybe time for a dye job?
 We are reading together the book, Infidel which the book club will be discussing in January.  There is a bookmark in it, so feel free to pick it up and read for awhile with her if you so prefer.  We have a CD player in her room and if you would like to bring some CD's to play, that would be great. If you leave them for awhile, just label them with your last name.
 Margaret is doing wonderful and does work hard on learning new skills.

Saturday, December 24, 2011

Saturday, December 24, Christmas Eve

Thanks for all the visits.  I am continuing with speech, occupational and physical therapy. The staff is encouraging and upbeat. My goal is to be back at home within a few weeks. Thank you Pam, for decorating the wall with ribbon and cards.

Dictated by Margaret to her sister, Barb

Friday, December 23, 2011

#2 Friday December 23

Emory Rehabilitation Center Phone Number is:  404-712-5512

Friday December 23

Margaret is snoozing away after 3 hours of therapy this morning.  She is practicing standing, sitting, moving her head and eyes to the left (extremely hard right now) and balancing.  She was driving her wheelchair yesterday but almost mowed down a doctor and decided to get even with her sister by pinning her against the wall.  Please check the wiki post "margaretinatlanta" for info on visiting, what to bring, parking, etc when visiting.  Margaret is still on a pureed diet but is looking around for salmon and octopus.  A thick juice such as Naked vegetable and fruit juices she likes and it is a change from the hospital fare. Santa Claus gave her a call last night so he knows where to find her!  Her family will most likely start working on her house to make it more wheelchair accessible as soon as we know a bit more next week.  If anyone has references for good home care  please pass that along.  For those who asked about sending cards and gifts her address is:
Margaret Pumper
Room Number 444
C/O Center for Rehabilitation Medicine
1441 Clifton Road, NE
Atlanta, GA 30322/

Thursday, December 22, 2011

Thursday, Dec. 22nd

Margaret has moved to Emory Rehab which is right across the street from the hospital.  She is in Room 444.

Wednesday, December 21, 2011

#2 Wednesday December 21

Just in- Margaret will be moving to Emory Rehabilitation Center tomorrow which is just across the street from Emory Hospital on Clifton Road.  Visitors are still welcomed - we just don't know the schedule yet.  Margaret is improving each day and her sense of humor keeps the therapy on a light note.  Roach, your Santa light up toy has proven invaluable to the therapists!  And Kathleen the quilt looks homey and beautiful on her bed tonight.  Joanne the pudding was gobbled up before anything else and not a drop of lunch was left. Manay the poinsettia adds to the cheeriness of the room with it's bright red petals.  Thank you from Margaret for all the support that is given.

Wednesday, December 21

 Thanks to my Atlanta friends who visited today, including Joanne and Barb.  Barb (my sister) is helping me research rehab facitlities.  I expect to choose a place by Wednesday. The nurses are taking good care of me and I get a warm bath every morning.

Wednesday, Dec. 21 (specific question from Mary)

Hi Atlanta friends,
Barb had posted that Margaret will be going to a rehab facility soon.  As of now, we're looking at Emory and Shepherd Center.  Do you know of anyone who works at either one of these facilities or is in the medical field and has a recommendation?  From what we currently know, either one of these places would be an excellent choice.  This question was also posted on the wiki website.  If you don't know what I'm talking about, look at the comment from Dec. 19.  Thanks.

Tuesday, December 20, 2011

Tuesday, December 20

Margaret is working at her rehabilitation as the Physical and Occupational therapists visit her and help her gain strength and mobility. After a few medical tests are finished she will be moving to a rehabilitation facility which we will keep you updated on so you will know where to find her!  From what I understand it will be an intensive time of work and classes. She has had visitors and greatly appreciates them.  Thank you for the flowers, cards and prayers you offer.

Monday, December 19, 2011

Monday, December 19

So much has happened since arriving at Emory hospital in Atlanta.  Physical, occupational and speech therapy have been initiated, visitors are starting to arrive, more tests are being taken.  Margaret was given a swallow test and finally was able to eat a hearty lunch today which she will need as the therapists have her doing many physical tasks. Rehab is all important right now.
  We would love to have you come visit Margaret as this is an important part of her recovery.  She is suggesting smoothie flavors to bring her and as of now your presence and encouragement is vital.  Thank you to those who consistently offer their help!

Saturday, December 17, 2011

Saturday, Dec. 17th

A VERY BIG day today!  Margaret arrived safely at Emory Hospital in Atlanta.  We're just waiting here now for the doctor.  Upon arriving at the hospital, Margaret really perked up  - I mean, all of these people talking English and we could understand everything they were saying!!  Her room is so spacious and comfy compared to what we had in Spain - it really makes you appreciate everything we have here in the US that we so often take for granted.  I think Margaret and I are both going to sleep like logs tonight.  I'll be heading back to MN tomorrow and our sister Barb will be taking over.  She arrived in Atlanta earlier today and met us at the hospital. I had hoped Margaret could write the blog tonight but she's already sleeping peacefully so maybe tomorrow.  Since this is my last blog entry, I just want to tell you how much it has meant to me to read your comments and know that there were so many people praying and thinking of Margaret while we were so far away. 

Mary

Friday, December 16, 2011

Friday, Dec. 16th

We are scheduled to depart Madrid Saturday morning via Delta commercial carrier and upon arriving, being transported to Emory University Hospital.  Please pray that if for any reason this should not happen at this time, that God will intervene.  Pray for a safe and uneventful flight and easy traveling for Margaret.  She is excited to come home.  Although I know that we'll have to hand out numbers outside of Margaret's room (!), please no visitors until we let you know that she is ready. Saturday will be a very long day and with the time change, remember that 6 PM Atlanta time is midnight Madrid time.  It will take a few days of adjustment to get back to the Eastern time zone. Tonight, will you please pray with me, "Dear Jesus, we ask that Your Will be made known.  We pray for your hand of healing and protection upon Margaret as we take this long flight home.  May your angels surround her and may Margaret feel Your peace.  Give the nurse who is accompanying us the wisdom to take the best possible care of Margaret. We ask this in Your holy name. Amen."

Wednesday, December 14, 2011

Wednesday, Dec. 14th

Starting to talk specifics about coming home now. Discussing commercial airliner vs. air ambulance - travel insurance company believes commercial airliner will work but have to have clearance from the airline for them to accept the passenger.  She will be traveling with medical personnel. Should know tomorrow about which hospital will be the receiving hospital.  She will be transported to the airplane via ambulance and in Atlanta, will also be transported to hospital via ambulance. Started rehab today and she ate very well tonight!  Also had some right hip pain so could be due to the activity or just being in bed for 3 weeks straight.    I turned music on tonight from Margaret's i-phone - I believe it was very relaxing for her.  Also started reading a book to her - a good way to end the evening. Big meeting among many specialists at the hospital tomorrow where they'll be discussing Margaret's timing of her departure.  Things change by the hour - it's been quite the roller coaster ride.

Tuesday, December 13, 2011

Tuesday, Dec. 13th

It's been 3 weeks today since Margaret had her stroke - hard to believe all that has happened in these past 21 days. Today, the pile of cards started arriving - wow!  Very fun to get mail and read all the wonderful messages!  Margaret has an amazing group of friends from all different arenas - tennis, book club, movie club, Fulbright group, Down's Syndrome group, work,  and I'm sure I'm forgetting something besides.  She's been a busy woman!  We're getting ever closer to having a date to come home - we hope to have something definite by the end of this week. Margaret did not get to go to the gym today unfortunately.  She needed an ultrasound today and the rehab people didn't know when the ultrasound was going to be done so they didn't want to have her gone from her room.  Kind of the way it is here.............. We had more smiles from Margaret today and we continue to see her left arm move so that's very encouraging.  I thank God for each and every one of you in Margaret's life - you will all play an important part in her recovery as she returns home.

Monday, December 12, 2011

Monday, Dec. 12th

First of all, I am so happy to share with you that we have been assigned the most amazing nurse case manager at UHC who is going to turn the world upside down to get Margaret home.

Secondly, in response to Shauna's comment, my e-mail address is mary.l.johnson01@gmail.com - we're looking forward to viewing the video!

When we came in to see Margaret this morning, she was very talkative and smiled a lot - so good to see that!  After morning nap, the rest of the day was more subdued.  Margaret was moving her left arm some today which is definitely encouraging.  They promised me Margaret would get a trip to the "gym" tomorrow so we're really looking forward to that.  The head neurologist wasn't there today so no official report but we'll be meeting with him and his team tomorrow and hopefully having a conversation with the UHC medical team and the Spanish medical team to come to some decisions on when Margaret can travel home.  Pray for that conversation - that the Spanish doctors will be receptive to information that the UHC team will be presenting to them as it may differ from their standard practice. 

Goodnight everyone - until tomorrow.

Saturday, December 10, 2011

Saturday, Dec. 10th

We've been telling Margaret about the blog and she said she wanted to write her own blog message tonight so here it is:  "I'm eating a lot, getting stronger and trying to find a cerveza (beer)!!"

Thursday, December 8, 2011

Thursday, Dec. 8th

Margaret surprises me.  I got several “yes” and “no” answers today with quite a bit of hesitation between my question and her answer and then a news show came on TV this evening and I asked Margaret if she knew who the person was, and she responded, “that’s the newly elected conservative prime minister of Spain” !!!!!!!!!!!!!!!   That's our Margaret!  Her left hand squeezed my hand today once.  Wow - don't know if it was voluntary or involuntary but it still moved!  One of Margaret's good friends from Georgetown sent this huge treasure box filled wih things and we've been bringing in something new every day. Today it was a battery operated toothbrush which Margaret really liked.  Another good day. 

Wednesday, Dec. 7th

Margaret continues to get stronger. She's eating well.  She's in a room with a shared TV with her roommate and although it's Spanish TV, Margaret is keeping her eyes open to watch the screen - it is entertaining to try and figure out what is going on!  To the movie group, Margaret's request for a movie is Toy Story 3 - we hear that Buzz Lightyear has a Spanish button and that's how Margaret is going to be when she returns - she's picking up Spanish by osmosis!  Forrest, thanks for the card.  We received it today. It's good to get real mail so I would encourage anyone to send a card to the APO address in one of these first blogs.  Mrs. Magnus, we heard about you from Jeremy and he must have showed us the picture of his classmates holding up their signs saying "We miss you Jeremy" at least 10 times.  He obviously loves going to school and loves his teachers and classmates. I imagine you'll be seeing his new article of clothing today but I won't spoil the surprise here. When we spoke with the neurologist today about how Margaret is doing, he indicated that she is doing very well medically - that if she was a Spaniard, she would shortly be moving to a rehab facility or to home with visits to a rehab clinic.  He didn't have the information he needed to determine when she could fly.  But later in the day, Dr. P., the embassy doctor came by and gave the neurologist some information from the New England Journal of Medicine and he feels she can come home in 7-10 days.  We hope the neurologist agrees when we see him again on Friday. Thursday again is a holiday so it's like things semi-stop at the hospital - no rehab exercises today, duty doctor on instead of neurologist - can be frustrating because I want things just to keep moving.  Patience, patience.....  Please pray for decisions to be made quickly and we have good communication with the travel insurance company so the details of Margaret's transfer back to the US proceed well.  Thank you.

Monday, December 5, 2011

Monday, Dec. 5th

Happy St. Nicholas Day!

Margaret moved from ICU to the stroke unit today.  Hallelujah!!!!!  Jeremy and Amelia got a chance to say hello and talk to her.  She has more alert times and more tired times.  It was a big day for her too.  She had a lot to say with Kim and I this evening and smiled several times. She ate pureed carrots, pureed fish stew and flan without any difficulty.  The neurologist needs to investigate the facts surrounding flying home and whether or not the change in airplane cabin pressure might present any issues.  He hopes to have more information about that by the end of this week. So I was able to be with Margaret from about 11:30 until 9:00 tonight.   I also want to tell you that I may not be able to keep up the blog every day since the hospital doesn't have wi-fi and I won't be getting home until late.  Thank you again many times over for all the well-wishes that keep pouring in and all the prayers lifted up to heaven on her behalf.

Sunday, December 4, 2011

Sunday, Dec. 4th

A great day!  Margaret's eyes were open, she was alert during our entire visits today and we had good conversation.  She asked us a lot of questions about her health status today. She gave us our first smile today too!  She's having a little difficulty with swallowing still and will be evaluated by a specialist tomorrow. Her children are here but have not been able to see her as she's still in the ICU.  She's well enough to see them but they have strict rules here and although the ICU has private rooms, it is very open with glass walls so you can see the other critically ill patients and so they don't want children there. We're hoping they'll be able to move her tomorrow or Tuesday.  We're looking forward to talking to her primary doctors tomorrow to hopefully get a better sense of when Margaret may be able to travel home.

Saturday, December 3, 2011

Saturday, Dec. 3rd

Dear friends,
Margaret continues to make progress. She's able to swallow pills now with a little water.  She wanted to make another phone call tonight.  She's following our conversations and continues to contribute to them.  She hasn't asked us for a notepad to write as she's able to speak what she wants to tell us.  Please pray that she'll be able to move to a regular room on Monday.  I think the more that we're able to be in the room with her, the faster she'll recover. 

Friday, December 2, 2011

Friday, Dec. 2nd

Dear friends,
More good news to share with you today. Margaret is talking more and opening her eyes more.  Kim and I do most of the talking and carry on a conversation about lots of things and Margaret will chime in every once in a while so she's following everything we're saying. She had her first taste of food since last Tuesday and she's swallowing well. The doctors are very encouraged by the progress she is making.  Tomorrow she wants us to bring in a movie!  It's midnight here now so making this short and sweet.  Thanks for the comments that you're sending - it warms my heart to know how many caring friends Margaret has. 

Thursday, December 1, 2011

Thursday, Dec. 1st

Today was an amazing day. 

When we came at 11:00, Margaret opened her eyes a little for a few seconds and said "hi" or something like that - I think we were so surprised we weren't prepared to listen!  That was the only thing she said during our visit.  Then the nurses came in and moved her from the bed to a chair so she could sit up better.  She wanted to text her children so she wrote what she wanted to say on a notepad.  Mind you, this is with her eyes closed so we just keep trying to move the paper as she's writing. She also wrote several more things she wanted to tell us.

When we came tonight at 6 PM, she was back in the chair again and she was talking to us!  There was no need for the notepad. 

She's getting stronger minute by minute, hour by hour. 

Thank you Jesus and thank you for all your prayers!